Valerie Colavecchio is the mom of a 17 year old boy named Parker who was born with a rare genetic disorder called galactosemia. She is also the statewide Program Manager for Family Support Services at Parent to Parent of NYS, where she takes pride in ensuring that every parent is heard, and understands they are not alone.

Valerie recently shared her experience and advice for navigating a diagnosis and rethinking “normal” with the National Genetics Education and Family Support Center. Watch her interview below!

Love that child, get to the right doctors, and everything else will fall into place.

Valerie Colavecchio