Recent CollaborationsOur Work

Telehealth in MCH Public Health Systems

Parent to Parent USA is providing subject matter expertise to the Association of Maternal & Child Health Programs (AMCHP) to support maternal and child health programs in building, improving, expanding, and sustaining the use of telehealth as part of the CARES Act pandemic response.

National Genetics Education and Family Support Center

Parent to Parent USA supports the National Genetics Education and Family Support Center in building a network of partners and develop accessible tools to improve access to and the quality of genetic services.

Lorestry

No one knows a baby or child better than their parent. Parent to Parent USA is proud to collaborate with Lorestry®, a NICU+ baby/child monitoring app that enables parents to collect and share their child's health story. Lorestry's on-demand, real-time development progression reports support self-advocacy for care access, supportive services, and for monitoring outcomes for a child's IFSP or IEP.

Navigate Newborn Screening

Parent to Parent USA is collaborating with Expecting Health on the launch of a free educational module for families called Navigate Newborn Screening. In this short module, families will learn about the newborn screening process, questions to ask their healthcare provider, and more.

Parenting Special Needs Magazine

Parent to Parent USA is proud to collaborate with Parenting Special Needs Magazine, along with the Home and Community Positive Behavior Support Network (HCPBS) and the Partnership for People with Disabilities to provide quarterly Family Chats. We discuss solutions to the challenges families face, live on Facebook.

Primary Care Collaborative

Parent to Parent USA has worked with the Primary Care Collaborative (PCC) to help address and improve patient and family engagement in clinical practices and to engage more practices in referring to parent to parent programs.

Project BENEFIT

Parent to Parent USA is partnering with UNC School of Medicine‘s Blaise Morrison, PhD, CRC, LPC, on the Patient-Centered Outcomes Institute (PCORI) funded Project BENEFIT: Building Effective Networks to Engage Families in Improving Transition. The long-term goals are to increase Intellectual and/or Developmental Disability (IDD) stakeholder engagement in research, improve IDD healthcare transition research and practices, and reduce health disparities for families from Black, Indigenous, and People of Color (BIPOC) and IDD communities.

Supported Decision-Making

Parent to Parent USA has been a partner with the National Resource Center on Supported Decision-Making (NRC-SDM) to promote Supported Decision-Making and Alternatives to Guardianship. With other parent organizations, we brought a parent voice to the project. We have compiled a listing of resources that may be of assistance to families and individuals with disabilities.